I was able, for the sixth year in a row, to speak in Mrs. Kline's practical nursing class at the Venango Technology Center on Tuesday about life with Marfan syndrome. I have a wonderful time sharing with the class my life story with Marfan syndrome and also about raising two sons with the condition. Even though I can have some very difficult days physically and I have had a number of major medical procedures, I am so happy that I am who I am.
Some folks want to feel sorry for me and are even apologetic that two of my sons have Marfan's, but I don't desire anyone's sympathy. I wouldn't change who I am for anything. When I was younger, yeah, maybe I did a little, but as I have gotten older I realize that I am exactly the way I was meant to be.
So, just as I told the students on Tuesday, each one of us has a story and each one of us has a choice regarding its use. We all have scars and pains in our lives, but we can and should use them to help others. To help bring Hope into their lives.
Some folks want to feel sorry for me and are even apologetic that two of my sons have Marfan's, but I don't desire anyone's sympathy. I wouldn't change who I am for anything. When I was younger, yeah, maybe I did a little, but as I have gotten older I realize that I am exactly the way I was meant to be.
So, just as I told the students on Tuesday, each one of us has a story and each one of us has a choice regarding its use. We all have scars and pains in our lives, but we can and should use them to help others. To help bring Hope into their lives.